World Downs Syndrome Day 2016

Leave a comment Standard

You may not be aware but on Monday 21st March 2016, we will be celebrating World Downs Syndrome Day 2016.  This day is recognised by the United Nations and will be celebrating its 11th anniversary this year. The reason that this day in particular is chosen is because people with Downs Syndrome have a triplication of chromosome 21.

Each year people with Downs Syndrome encourage their friends and family to wear different socks to signify that everyone is different, not just those who happen to have a disability.

We will be wearing our craziest socks and encourage you to do the same!

More information about WDSD 2016 can be found here: WDSD 2016

Why is speech therapy so important?

Leave a comment Standard

Chatterbox was set up by a group of parents who were all dissatisfied by the lack of speech therapy they received from the NHS, so took it upon themselves to form a Group where regular speech therapy could take place, in the school setting (so as not to disrupt the working day), with the support of the child’s Teaching Assistant.

Why is speech therapy so vital for our children?

Speech and language intervention is probably the most important focus for children with Downs Syndrome, both in terms of cognitive and social development.

We have found that in most cases, children of school age with Downs Syndrome, use spoken language as their main form of communication.  This is often backed up by ‘Makaton’ (a form of key word signing), but by the time a child starts in Reception year, the aim is very much to focus on the development of speech, clear production of small sentences and articulation which in turn also supports the start of early reading techniques. Most children with Downs Syndrome have a much better understanding of the spoken word than production of sound.

Our Therapist works very closely with each member of our Group and gets to know what motivates and encourages them and what they find difficult.  The Therapist works with the TA to set objectives on grammar, comprehension and production as well as articulation, phonology and intelligibility (ie. pace, tone of voice etc). Oral-motor assistance is also reviewed (chewing, biting, feeding, drinking) as this directly links to speech and is something which is closely monitored in the early years.

We are grateful for the lovely Therapist we use presently.  Our children look forward to her weekly visit and she makes the sessions fun, lively and engaging.

DSC_0051

 

 

 

EBDSSG

Leave a comment Standard

The East Berkshire Downs Syndrome Support Group (EBDSSG)

Although Chatterbox is an independently run, voluntary group, everyone at Chatterbox is also a member of a local support group for families caring for some with Downs Syndrome called The East Berkshire Downs Syndrome support Group (EBDSSG).

This Group provides invaluable support for parents who have just been given a Downs Syndrome diagnosis in pregnancy, those who find out their baby has Downs Syndrome at birth and then offers ongoing support, advice and friendship throughout their lives, into adulthood.

The EBDSSG is a well established charity that currently supports 68 families in the local area.  They are affiliated to the Downs Syndrome Association (charity #1147303).

For further info on EBDSSG, please take a look at their website – ebdssg

 

Simon Ward

Leave a comment Standard

Chatterbox has inspired a local Artist to donate an original piece of art.

Local Artist, Simon Ward decided he wanted to support Chatterbox through his connection with one of our members.  He very kindly raffled off one of his stunning pieces and by doing so raised a grand sum of £420 for our Group

You can see more of his work by visiting his Facebook page – https://www.facebook.com/Artwork2order/

Thanks Simon from all at Chatterbox!

image1

Swimarathon update

Leave a comment Standard

This is the ‘before’ photo of the Chatterbox Swimarathon Team 2016.

We gathered at the poolside on Saturday morning and swam continuously for 1 hour and managed to complete 55 laps!!  We had a truly mixed Team, all abilities and ages and each did our bit.

The Maidenhead Lions Club raised a huge £20,500 with this figure expected to increase once money starts being paid in and gift aid is applied.

Our Team raised a whopping £700!!!!!!

Well done to everyone who swam on Saturday.  A big thank you to those who came along and cheered us on and an even bigger thank you to everyone who sponsored us.  We really are very grateful.

DSC_1255

Swimarathon 2016

Leave a comment Standard

Saturday 9 January 2016 sees Chatterbox once again taking part in the local Swimarathon, run by the Lions Club.  We had our first experience of the Swimarathon last year and LOVED it so much we are back again for more.  Last year we raised just over £1,000 (and were also awarded a special prize from the Lions) and would like to aim to get close to this again this year.

We have a sterling swim team once again, with swimmers of all ages and abilities, all swimming to raise funds for Chatterbox.

If you are in the area and would like to come and cheer us on, we are swimming for 1 hour from 10am tomorrow morning at The Magnet Leisure Centre, Maidenhead.  We would love to see you.

Go Team Chatterbox!!!!!IMG_1216

THANK YOU!

Leave a comment Standard

 

A very BIG thank you for EVERYONE who supported out Coffee & Cupcake morning this year.  We had a great morning – cakes, tea, a brilliant raffle and auction as well as lovely ladies from Pheonix Cards (Katherine Findlay) and Africa Darling (Helen Steel) selling lovely Christmas gifts.

We raised a huge £1,343!!!!!!!!!!

This makes such a huge difference to Chatterbox and we are all so grateful to everyone who has supported us in 2015.

IMG_2363

Cooooookkkkkiiiiieeeeeeeeeee

Afternoon Tea @Stoke Park anyone??

Leave a comment Standard

We have just been given another AMAZING prize for the Silent Auction at the annual Chatterbox Coffee & Cupcake morning (this Friday!!!).

Enjoy delicious Afternoon Tea for 2 people in the luxurious surroundings of The Orangery at Stoke Park Country Club & Spa.  You will be served a selection of handcut sandwiches, cakes and scones with jam and clotted cream, served with your choice of tea or coffee.

This really is a lovely experience so come along on Friday and bid!

Stoke Park

IMG_2813